Programme

 

Starts at: June 6th, 2024
9:00 –  Opening ceremony

Under the patronage of the President of the Republic of Slovenia, Nataša Pirc Musar, PhD

Welcome speeches:

• Mateja Nagode, Directorate for the Elderly, Long-Term Care and Deinstitutionalization, Ministry of Solidarity-Based Future

• Biserka Marolt Meden, Social Activities Adviser to the President of Republic of Slovenia

• Valentina Prevolnik Rupel, Minister of Health, Government of Slovenia

• Marko Lotrič, the President of The National Council of the Republic of Slovenia

• mag. Urška Klakočar Zupančič, President of the National Assembly of the Republic of Slovenia

9:45 Plenary lectures:

Chair: Martin Persson

•  Zvezdan Pirtošek: “Neurodegenerative Diseases: Yesterday, Today and Tomorrow”

•  Dick F. Swaab: “Sex Differences in Alzheimer’s Disease: Postmortem Studies”

10:45 Break
11:00 HALL 1 – Section plenary lectures

Chair: Zvezdan Pirtošek

•  Martin J. Persson: “nEUROcare in Sri Lanka: A New Frontier in Neurodegenerative Disease Education”

•  Wendy Weidner: “The Global Impact of Dementia: Equal Access to Treatment, Care and Support”

•  Albert Ludolph: “Is prevention of neurodegenerative diseases realistic?“

13:00 Lunch
14:00 HALL 1 – Innovations in Neurodegenerative Disease Research

Chair: Albert Ludolph and Blaž Koritnik

HALL 2 – Clinical Practices and Care

Chair: Sudath Warnakulasuriya and Prasanna Herath

HALL 3 – Family relations, supportive environment, and social networks

Chair: Lucia Bergamini and Monika Ažman

•  Vladimira Vuletić: “Microbiota and Neurodegenerative Diseases”

•  Blaž Koritnik: “Gene-Targeted Therapy in Amyotrophic Lateral Sclerosis”

•  Veronika Klose: “Blood Brain Barrier Integrity in ALS – a CSF Study in More Than 1000 Patients”

•  Nataša Klepac: “The Role of Cognitive
Training in the Treatment of Cognitively Impaired Patients”

•  Katarina Vogelnik Žakelj: “Analysis of Involuntary Movements in Patients with Motor Neuron Disease”

Short Presentations:

• Nikola Andrejić: “R47H TREM2 Variant among Serbian Alzheimer’s Disease Patients“

Poster Presentations (5′):

•Ana Kuder: “The Role of Cognitive Reserve in Cognitive Functioning of Patients with ALS: a Systematic Review”

•  Sudath Warnakulasuriya: “nEUROcare Project Sri Lanka: Transforming Higher Education and Healthcare Through Innovation”

•  H.M.P. Herath: “From Ancient Roots to Modern Challenges: Tracing the History and Evolution of Healthcare in Sri Lanka”

• Sara Kadenšek: “Social Cognition in Patients with ALS”

Short Presentations:

• Andres Köster; “Communication, Voice, and Swallowing Disorders in People with Neurodegenerative Disorders“

• Anja Grušovnik Mušič: “Rehabilitation Options for People with Dementia after Hip Fracture“

Poster Presentations (5′):

• Kalpani Abhayasinghe: “A Health Promotion Intervention to Promote Positive Ageing Among a Group of Older Adults in a Rural Environment”

•  Monika Ažman: Interprofessional Cooperation, the Key to Safe and Quality Patient Treatment

• Lucia Bergamini: “Primary Prevention and Interventions to Reduce Cognitive Decline”

•  Katarina Kocbek: “Exploring Predictors and Outcomes of Decent Work from the Psychological Perspective”

Short Presentations:

• Dinithi Vidanage: “Challenges in Caring for People with Neurodegenerative Disorders; A Narrative on Asian Perspectives“

Poster Presentations (5′):

• Alenka Oven: “The needs of Caregivers of People with Dementia” 

16:00 Break
16:30 HALL 1 – Innovations in Neurodegenerative Disease Research – Brain Banking and Biomarkers

Chair: Boris Rogelj and Emanuele Buratti

HALL 2 – Comprehensive Patient Care, from Timely Diagnosis to Care Planning

Chair: Vlado Dimovski 

HALL 3 – Community health and care services

Chair: Nena Kopčavar Guček and Maliga Wijesiri

•  Boris Rogelj: “Translational Defects in Frontotemporal Dementia Associated with C9orf72 Mutation”

• Elka Stefanova: “The Role of Biomarkers in AD Diagnosis”

• Emanuele Buratti: “TDP-43 Splicing Regulation as a Driver of Pathology and Potential Diagnostic Indication”

Short Presentations:

• Helena Motaln: “Phosphorylated RNA-binding Proteins in Neurodegenerative Diseases”

Poster Presentations (5′):

• Urša Čerček:“Expression of Membrane Proteins in altered in C9orf72 Mutation-Associated ALS and FTD”

• Jerneja Nimac: “The Protein Interactome of TDP-43 in ALS: A Mystery Still Waiting to be Solved”

 

•  Vlado Dimovski: “Establishing a European Knowledge Hub: The Case of Multidisciplinary Research and Development Center of University of Ljubljana for Social Innovations for Active and Healthy Ageing”

•  D.A.R.K. Dasanayaka: “The Multidisciplinary Nature of the Management of Patients with NDDs“

Short Presentations:

• CKW Gamage: “The Impact of Mindfulness Interventions on Parkinson’s Disease in Asia: A Narrative Review“

• Myrto Patagia Bakaraki: “Disorders in Sensory Processing that Affect Memory Storage Mechanisms”

Poster Presentations (5′):

•  Špela Glišović Krivec: “AI applied to neurodegenerative diseases: opportunities and challenges”

•  Špela Glišović Krivec: “Re-framing societal perception of neurodegenerative diseases for comfortable ageing”

 

 

•  Nena Kopčavar Guček: “A hidden Agenda: Dementia as a Risk Factor for Interpersonal Violence”

•  Klara Trpkova Bergant: “Lost in Translation? How to Build a Better Communication with ALS Patient”

Short Presentations:

•  Maliga Wijesiri: “Student Nurses’ Knowledge and Attitudes Towards Dementia Care: A Systematic Review”

•  Pramudika Kariyawasam: “Perceived Level of Knowledge Related to NDD and Care Among Sri Lankan Health Care Professionals, Educators, and Undergraduates“

Poster Presentations (5′):

• Anamarija Kejžar: “Sports in Dementia“

18:00 Summary of the day, daily conclusions à Welcome reception follows

Ceremony speeches from nEUROcare representative, Guest speakers

Starts at: June 7th, 2024
9:00 HALL 1 – Novelties in Clinical Assessment, Evaluation, Treatment

Chair: Milica Kramberger and Srećko Gajović

HALL 2 – Psychology in Care for Persons Living with Neurodegenerative Disorders

Chair: Gabriela Novotni and Martin Persson

HALL 3 – Digital Health

Chair: Tanja Zdolšek Draksler and George Manias

  • Polona Rus Prelog: “Late-Life Depression: Prevention, Assessment, Treatment and Care“
  • Zvezdan Pirtošek: “Advanced Stage Parkinson’s Disease: Innovations in Management and Care”
  • Srećko Gajović: “In Vivo Imaging of Mouse Brain Damage and Repair Reveals Their Temporal Dynamics – an Example of Ischemia-Reperfusion Injury“
  • Matej Perovnik: “Metabolic Imaging and Connectivity in Neurodegenerative Dementias“
  • Milica Kramberger: “Clinically Meaningful Therapy in Neurodegenerative Diseases”
  • Tomaž Rus: “Metabolic Imaging and Connectivity in Neurodegenerative Parkinsonisms“

_____________________________________

  • 10:30-12:00 – Panel: European Neuro-Research Entering Tomorrow: Western Balkan Perspectives (Golden Hall) – invited guests only
  • Gabriela Novotni: “North Macedonia Interprofessional Dementia Care (NOMAD)-Personalized Care Plans for People with Dementia and Caregiver Psychoeducation“
  • Anna-Karin Edvinsson, Emma Edberg Matei: “Exploring the Foundations: Theoretical Constructs of Person-Centered Care”
  • Martin Persson, Emma Edberg Matei: “Navigating Wellness Together: The Role of Active Commitment Therapy in Healthcare and Patient Support”
  • Polona Campolunghi Pegan: “Implementing the Montessori Approach in a Nursing Home: A Case Study of Three Months of Dementia Care”

Poster Presentations (5′):

Sarath Rathnayake: “Development of the Sinhala Version of Dementia Knowledge Assessment Scale : A validation study”

  • Nina Remškar, member of the cabinet of the Minister of Health

 

  • Samo Zorc, Ministry of Digital Transformation, Slovenia: “Role of Health in AI National Policy”
  • Jure Jeraj: “Data Spaces and Opportunities for Healthcare”
  • Erik Novak: “How Smart Tech Makes Health Records Smarter (PREPARE Solutions for Better Healthcare)”
  • Aleš Holobar: Hybrid Neuroscience (Project HybridNeuro)
  • Andrej Srakar: “Artificial Intelligence Models in Health Research”

 

11:00 Break
11:30 HALL 1 – Prevention and Lifestyle Solutions, Oral Health, Speech and Sleep 

Chair: Emma Edberg Matei and Mateja Lopuh

HALL 2 – Workshop with patients HALL 3 – Digital Health

Chair: Matej Kovačič and George Manias

  • Anna-Karin Edvinsson, Emma Edberg Matei: “The Essence of Person-Centered Care in Neurodegenerative Diseases”
  • Mateja Lopuh: “Palliative Care in Neurodegenerative Disease – a Useful Tool in Better Clinical Management of Patients”
  • Riina Runnel: “An Overlooked Aspect: Oral Health”
  • Martin Rakuša: “More Than Medicine: The Role of Palliative Care in Alzheimer’s”
  • Stanislava Ristič-Kovačič: »Integrating of palliative and multidisciplinary care in ALS disease«
  • WORLDS OF CREATIVITY – PAINTING EXHIBITION OF ELDERLY WITH DIFFERENT SKILLS, painting workshop for people with dementia, Home of the Elderly Fužine, Ljubljana
 

  • Vida Groznik: “Eye-Tracking Test Batteries: Detecting Cognitive Impairments in Diverse Populations”
  • Umut Arioz: »Artificial Intelligence Solutions To Support Palliative Care In Dementia« (project AI4HOPE)
  • George Manias: “Leveraging the potential of AI and Big Data through a holistic and integrated care platform”
  • Francesco Miele: »Doctors’ and patients’ narratives about the role of AI in Parkinson’s Disease Management«
13:00 Lunch
14:00 HALL 1 – Potential Novel Pharmacotherapies; Other Topics

Chair: Gorazd Drevenšek

HALL 2 – Public health promotion and communication

Chair: Steve Smith

HALL 3 – Digital Health

Chair: Tanja Zdolšek Draksler and Matej Kovačič 

  • Sakeena Hameem: “Polypharmacy in the Elderly: A Global Risk Factor”

Short Presentations:

• Vesna van Midden: “The effect of Transcutaneous Auricular Vagus Nerve Stimulation on Gait Characteristics in Parkinson’s Disease Patients”

Poster Presentations (5′):

• Urška Černe: “Impairment of Intracellular Calcium Signalling and Glucose Metabolism in Aging Brain“

• Lara Ružič Povirk: “The Role of Nasal Microbiota in the Development and Progression of Neurodegenerative Disorders“

• Laura Primšar: “Multimodal Role of GLP-1 and GIP Agonists in Dementia, Diabetes, and Mood Disorders: Advancing Therapeutic Paradigms” 

• Jakob Sajovic: »Ears and Eyes: Evaluating How People with Dementia Respond to Music Using Pupillometry«

• Gregor Gros: »The Impact of Oral Health Indicators on Cognitive Function in Elderly Populations (A Study on ADAS Scores and Oral Health)«


Starts at 16:00

  • Panel Discussion: Towards the Slovenian Brain Bank
    Maja Bresjanac
    Milica Gregorič Kramberger
    Miha Jerala
    Blaž Koritnik
    Albert Ludolph
    Tadeja Režen
    Boris Rogelj

    Matija Tomc

  • Simon Colnar: “Exploring the Health and Quality of Life of Older Adults“
  • Bimba Wikramarachchi: “Communication Strategies Used for NDD Patients”
  • Steve Smith: “Huntington’s Disease: a Good Model for Neurocare?“
  • Osman Kučuk: “Bosnia and Herzegovina Through Dementia Eyes”

Short Presentations: 

• Kalpani Abhayasinghe: “Challenges in Dementia Caregiving in Sri Lanka: a Phenomenological Inquiry”

• Pramudika Kariyawasam: “Perceived Level of Knowledge Related to the NDD and Care Among Sri Lankan Health Care Professionals, Educators and Undergraduates”

Poster Presentations (5′):

• Thamudi Darshi Sundarapperuma: “Perspectives of Stakeholders on Developing a Masters Degree in Neurodegenerative Disease Care for Healthcare Workers in Sri Lanka-A Qualitative Study”

• Kumari De Silva: “Necessity of Initiation of a Master Degree Programme on Neurodegenerative Disease Care in Sri Lanka”


Starts at 16:00

  • Andri Christodoulou, Marilena Mousoulidou & Elly Anastasiades: “Empowering Through Understanding–Counselling Essentials in Neurodegenerative Care” (workshop)
  • Simon Rekanovič: “Standardization of health data“
  • Rostislav Kostadinov: “Attitude of healthcare professionals towards digital technologies“

Rethinking Healthcare with Digital Health Technology – Panel Discussion

  • Vida Groznik,
  • George Manias
  • Samo Zorc
  • Simon Rekanovič
  • Tilen Rečko
  • moderated by: Mojca Cvirn

________________________________

 

18:00 Summary of the day, conference closing event

LEGEND OF SECTION COLOR CODING:

  • The research in neurodegenerative diseases section
  • The clinical practice, care and prevention section
  • The technology, localization, public communication and policy section

Hall 1 – Grand Union Hall

Hall 2 – White Hall

Hall 3 – Glass Hall

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