Programme

 

Starts at: June 6th, 2024
9:00 –  Opening ceremony

Under the patronage of the President of the Republic of Slovenia, Nataša Pirc Musar, PhD

Welcome speeches:

Mateja Nagode, Directorate for the Elderly, Long-Term Care and Deinstitutionalization, Ministry of Solidarity-Based Future

Biserka Marolt Meden, Social Activities Adviser to the President of Republic of Slovenia

Valentina Prevolnik Rupel, Minister of Health, Government of Slovenia

Marko Lotrič, the President of The National Council of the Republic of Slovenia

• mag. Urška Klakočar Zupančič, President of the National Assembly of the Republic of Slovenia

9:45 Plenary lectures:

Chair: Martin Persson

•  Zvezdan Pirtošek: “Neurodegenerative Diseases: Yesterday, Today and Tomorrow”

•  Dick F. Swaab: “Sex Differences in Alzheimer’s Disease: Postmortem Studies”

10:45 Break
11:00 HALL 1 – Section plenary lectures

Chair: Zvezdan Pirtošek

•  Martin J. Persson: “nEUROcare in Sri Lanka: A New Frontier in Neurodegenerative Disease Education

•  Wendy Weidner: “The Global Impact of Dementia: Equal Access to Treatment, Care and Support

•  Albert Ludolph: “Is prevention of neurodegenerative diseases realistic?

13:00 Lunch
14:00 HALL 1 – Innovations in Neurodegenerative Disease Research

Chair: Albert Ludolph and Blaž Koritnik

HALL 2 – Clinical Practices and Care

Chair: Sudath Warnakulasuriya and Prasanna Herath

HALL 3Family relations, supportive environment, and social networks

Chair: Lucia Bergamini and Monika Ažman

•  Vladimira Vuletić: “Microbiota and Neurodegenerative Diseases”

•  Blaž Koritnik: “Gene-Targeted Therapy in Amyotrophic Lateral Sclerosis”

•  Veronika Klose: “Blood Brain Barrier Integrity in ALS – a CSF Study in More Than 1000 Patients”

•  Nataša Klepac: “The Role of Cognitive
Training in the Treatment of Cognitively Impaired Patients

•  Katarina Vogelnik Žakelj: “Analysis of Involuntary Movements in Patients with Motor Neuron Disease”

Short Presentations:

Nikola Andrejić: “R47H TREM2 Variant among Serbian Alzheimer’s Disease Patients

Poster Presentations (5′):

•Ana Kuder: “The Role of Cognitive Reserve in Cognitive Functioning of Patients with ALS: a Systematic Review”

•  Sudath Warnakulasuriya: “nEUROcare Project Sri Lanka: Transforming Higher Education and Healthcare Through Innovation”

•  H.M.P. Herath: “From Ancient Roots to Modern Challenges: Tracing the History and Evolution of Healthcare in Sri Lanka”

• Sara Kadenšek: “Social Cognition in Patients with ALS”

Short Presentations:

Andres Köster; “Communication, Voice, and Swallowing Disorders in People with Neurodegenerative Disorders

Anja Grušovnik Mušič: “Rehabilitation Options for People with Dementia after Hip Fracture

Poster Presentations (5′):

• Kalpani Abhayasinghe: “A Health Promotion Intervention to Promote Positive Ageing Among a Group of Older Adults in a Rural Environment”

•  Monika Ažman: Interprofessional Cooperation, the Key to Safe and Quality Patient Treatment

• Lucia Bergamini: Primary Prevention and Interventions to Reduce Cognitive Decline”

•  Katarina Kocbek: “Exploring Predictors and Outcomes of Decent Work from the Psychological Perspective”

Short Presentations:

Dinithi Vidanage: “Challenges in Caring for People with Neurodegenerative Disorders; A Narrative on Asian Perspectives

Poster Presentations (5′):

Alenka Oven: “The needs of Caregivers of People with Dementia” 

16:00 Break
16:30 HALL 1 – Innovations in Neurodegenerative Disease Research – Brain Banking and Biomarkers

Chair: Boris Rogelj and Emanuele Buratti

HALL 2 – Comprehensive Patient Care, from Timely Diagnosis to Care Planning

Chair: Vlado Dimovski 

HALL 3 Community health and care services

Chair: Nena Kopčavar Guček and Maliga Wijesiri

•  Boris Rogelj: “Translational Defects in Frontotemporal Dementia Associated with C9orf72 Mutation”

Elka Stefanova: “The Role of Biomarkers in AD Diagnosis”

Emanuele Buratti: “TDP-43 Splicing Regulation as a Driver of Pathology and Potential Diagnostic Indication”

Short Presentations:

• Helena Motaln: “Phosphorylated RNA-binding Proteins in Neurodegenerative Diseases”

Poster Presentations (5′):

• Urša Čerček:“Expression of Membrane Proteins in altered in C9orf72 Mutation-Associated ALS and FTD”

• Jerneja Nimac: “The Protein Interactome of TDP-43 in ALS: A Mystery Still Waiting to be Solved”

 

•  Vlado Dimovski: Establishing a European Knowledge Hub: The Case of Multidisciplinary Research and Development Center of University of Ljubljana for Social Innovations for Active and Healthy Ageing

•  D.A.R.K. Dasanayaka: “The Multidisciplinary Nature of the Management of Patients with NDDs“

Short Presentations:

• CKW Gamage: “The Impact of Mindfulness Interventions on Parkinson’s Disease in Asia: A Narrative Review

• Myrto Patagia Bakaraki: “Disorders in Sensory Processing that Affect Memory Storage Mechanisms”

Poster Presentations (5′):

•  Špela Glišović Krivec: “AI applied to neurodegenerative diseases: opportunities and challenges”

•  Špela Glišović Krivec: “Re-framing societal perception of neurodegenerative diseases for comfortable ageing”

 

 

•  Nena Kopčavar Guček: “A hidden Agenda: Dementia as a Risk Factor for Interpersonal Violence”

•  Klara Trpkova Bergant: “Lost in Translation? How to Build a Better Communication with ALS Patient

Short Presentations:

•  Maliga Wijesiri: “Student Nurses’ Knowledge and Attitudes Towards Dementia Care: A Systematic Review”

•  Pramudika Kariyawasam: Perceived Level of Knowledge Related to NDD and Care Among Sri Lankan Health Care Professionals, Educators, and Undergraduates

Poster Presentations (5′):

• Anamarija Kejžar: “Sports in Dementia

18:00 Summary of the day, daily conclusions à Welcome reception follows

Ceremony speeches from nEUROcare representative, Guest speakers

Starts at: June 7th, 2024
9:00 HALL 1 – Novelties in Clinical Assessment, Evaluation, Treatment

Chair: Milica Kramberger and Srećko Gajović

HALL 2 – Psychology in Care for Persons Living with Neurodegenerative Disorders

Chair: Gabriela Novotni and Martin Persson

HALL 3 – Digital Health

Chair: Tanja Zdolšek Draksler and George Manias

  • Polona Rus Prelog: Late-Life Depression: Prevention, Assessment, Treatment and Care
  • Zvezdan Pirtošek: “Advanced Stage Parkinson’s Disease: Innovations in Management and Care”
  • Srećko Gajović: “In Vivo Imaging of Mouse Brain Damage and Repair Reveals Their Temporal Dynamics – an Example of Ischemia-Reperfusion Injury
  • Matej Perovnik:Metabolic Imaging and Connectivity in Neurodegenerative Dementias
  • Milica Kramberger: “Clinically Meaningful Therapy in Neurodegenerative Diseases”
  • Tomaž Rus:Metabolic Imaging and Connectivity in Neurodegenerative Parkinsonisms

_____________________________________

  • 10:30-12:00 – Panel: European Neuro-Research Entering Tomorrow: Western Balkan Perspectives (Golden Hall) – invited guests only
  • Gabriela Novotni: “North Macedonia Interprofessional Dementia Care (NOMAD)-Personalized Care Plans for People with Dementia and Caregiver Psychoeducation
  • Anna-Karin Edvinsson, Emma Edberg Matei: “Exploring the Foundations: Theoretical Constructs of Person-Centered Care”
  • Martin Persson, Emma Edberg Matei: “Navigating Wellness Together: The Role of Active Commitment Therapy in Healthcare and Patient Support”
  • Polona Campolunghi Pegan: “Implementing the Montessori Approach in a Nursing Home: A Case Study of Three Months of Dementia Care”

Poster Presentations (5′):

Sarath Rathnayake: “Development of the Sinhala Version of Dementia Knowledge Assessment Scale : A validation study”

  • Nina Remškar, member of the cabinet of the Minister of Health

 

  • Samo Zorc, Ministry of Digital Transformation, Slovenia: “Role of Health in AI National Policy”
  • Jure Jeraj: “Data Spaces and Opportunities for Healthcare”
  • Erik Novak: “How Smart Tech Makes Health Records Smarter (PREPARE Solutions for Better Healthcare)”
  • Aleš Holobar: Hybrid Neuroscience (Project HybridNeuro)
  • Andrej Srakar: “Artificial Intelligence Models in Health Research”

 

11:00 Break
11:30 HALL 1 – Prevention and Lifestyle Solutions, Oral Health, Speech and Sleep 

Chair: Emma Edberg Matei and Mateja Lopuh

HALL 2 – Workshop with patients HALL 3 – Digital Health

Chair: Matej Kovačič and George Manias

  • Anna-Karin Edvinsson, Emma Edberg Matei: “The Essence of Person-Centered Care in Neurodegenerative Diseases”
  • Mateja Lopuh: “Palliative Care in Neurodegenerative Disease – a Useful Tool in Better Clinical Management of Patients”
  • Riina Runnel: “An Overlooked Aspect: Oral Health”
  • Martin Rakuša: “More Than Medicine: The Role of Palliative Care in Alzheimer’s”
  • Stanislava Ristič-Kovačič: »Integrating of palliative and multidisciplinary care in ALS disease«
  • WORLDS OF CREATIVITY – PAINTING EXHIBITION OF ELDERLY WITH DIFFERENT SKILLS, painting workshop for people with dementia, Home of the Elderly Fužine, Ljubljana
 

  • Vida Groznik: Eye-Tracking Test Batteries: Detecting Cognitive Impairments in Diverse Populations”
  • Umut Arioz: »Artificial Intelligence Solutions To Support Palliative Care In Dementia« (project AI4HOPE)
  • George Manias: “Leveraging the potential of AI and Big Data through a holistic and integrated care platform”
  • Francesco Miele: »Doctors’ and patients’ narratives about the role of AI in Parkinson’s Disease Management«
13:00 Lunch
14:00 HALL 1 – Potential Novel Pharmacotherapies; Other Topics

Chair: Gorazd Drevenšek

HALL 2 – Public health promotion and communication

Chair: Steve Smith

HALL 3 – Digital Health

Chair: Tanja Zdolšek Draksler and Matej Kovačič 

  • Sakeena Hameem: “Polypharmacy in the Elderly: A Global Risk Factor”

Short Presentations:

• Vesna van Midden: “The effect of Transcutaneous Auricular Vagus Nerve Stimulation on Gait Characteristics in Parkinson’s Disease Patients”

Poster Presentations (5′):

• Urška Černe: “Impairment of Intracellular Calcium Signalling and Glucose Metabolism in Aging Brain

• Lara Ružič Povirk: “The Role of Nasal Microbiota in the Development and Progression of Neurodegenerative Disorders

• Laura Primšar: “Multimodal Role of GLP-1 and GIP Agonists in Dementia, Diabetes, and Mood Disorders: Advancing Therapeutic Paradigms” 

• Jakob Sajovic: »Ears and Eyes: Evaluating How People with Dementia Respond to Music Using Pupillometry«

• Gregor Gros: »The Impact of Oral Health Indicators on Cognitive Function in Elderly Populations (A Study on ADAS Scores and Oral Health)«


Starts at 16:00

  • Panel Discussion: Towards the Slovenian Brain Bank
    Maja Bresjanac
    Milica Gregorič Kramberger
    Miha Jerala
    Blaž Koritnik
    Albert Ludolph
    Tadeja Režen
    Boris Rogelj

    Matija Tomc

  • Simon Colnar: “Exploring the Health and Quality of Life of Older Adults
  • Bimba Wikramarachchi: “Communication Strategies Used for NDD Patients”
  • Steve Smith: “Huntington’s Disease: a Good Model for Neurocare?“
  • Osman Kučuk:Bosnia and Herzegovina Through Dementia Eyes

Short Presentations

• Kalpani Abhayasinghe: “Challenges in Dementia Caregiving in Sri Lanka: a Phenomenological Inquiry”

• Pramudika Kariyawasam: “Perceived Level of Knowledge Related to the NDD and Care Among Sri Lankan Health Care Professionals, Educators and Undergraduates”

Poster Presentations (5′):

Thamudi Darshi Sundarapperuma: “Perspectives of Stakeholders on Developing a Masters Degree in Neurodegenerative Disease Care for Healthcare Workers in Sri Lanka-A Qualitative Study”

• Kumari De Silva: “Necessity of Initiation of a Master Degree Programme on Neurodegenerative Disease Care in Sri Lanka”


Starts at 16:00

  • Andri Christodoulou, Marilena Mousoulidou & Elly Anastasiades: Empowering Through UnderstandingCounselling Essentials in Neurodegenerative Care” (workshop)
  • Simon Rekanovič: “Standardization of health data
  • Rostislav Kostadinov: “Attitude of healthcare professionals towards digital technologies

Rethinking Healthcare with Digital Health Technology – Panel Discussion

  • Vida Groznik,
  • George Manias
  • Samo Zorc
  • Simon Rekanovič
  • Tilen Rečko
  • moderated by: Mojca Cvirn

________________________________

 

18:00 Summary of the day, conference closing event

LEGEND OF SECTION COLOR CODING:

  • The research in neurodegenerative diseases section
  • The clinical practice, care and prevention section
  • The technology, localization, public communication and policy section

Hall 1 – Grand Union Hall

Hall 2 – White Hall

Hall 3 – Glass Hall

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